Nihal, Child of the Moon
Xeroderma Pigmentosum is one of more than 7000 rare genetic diseases. It is characterised by excessive skin sensitivity to ultraviolet radiation, eye problems and a greatly increased risk of developing skin or eye cancers. Specifically, the DNA repair mechanisms are inoperative. To date, there is no treatment. The only way for sufferers to live with the disease is to protect themselves as much as possible from UV-emitting light sources. This work is a documentation of the daily life of Nihal, a 25-year-old child of the Moon who, despite her illness and various constraints, proves that it is possible to live a fulfilling life.
